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Guillain-Barré Syndrome Support Group

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Information about the Charity: our history, constitution, location etc.
Comprehensive information about GBS, CIDP and related conditions that you can view, download and print.
We provide practical and emotional support (including home and hospital visits) to patients and families in the UK and Ireland.
How to join the Support Group and Pages of information for our members.
Further information for health professionals.
Support us by making a financial donation to the Support Group.

Support (UK and Republic of Ireland)



Logo clothing and gifts

Our main support activities are restricted to the United Kingdom and the Republic of Ireland. Anyone can make use of our interactive Guestbook and Forum or download our information.

Why register with us?

  • It's free
  • We can send you printed versions of our information
  • A local contact will get in touch at your request and may organise a hospital visit
  • We have specialist contacts for unusual conditions/circumstances
  • We may be able to offer additional assistance (Support Fund)
  • You will receive a copy of our yearbook
  • You will be mailed our newsletter
  • You will have the opportunity to meet others at meetings and conferences
  • ***Only register if you live in the United Kingdom or the Republic of Ireland.

There is no charge for these services. After some months, we will write to you and invite you to become a member of the Charity. This is entirely optional. We will not disclose any personal details.

If you live in another country and would like to receive our yearbook and newsletter, you should join the Charity.

Free Telephone Helpline (UK-Ireland Only)

Our Helpline volunteers should be able to address your immediate concerns and answer your questions. We can register you by phone for the advantages listed above.

From UK, call 0800 374803. From the Republic of Ireland, call 00 44 1529 415278 (normal rate to Great Britain applies). Please do not use the Helpline for routine or administrative calls. These should be made on 01529 304615.

Support Fund (UK-Ireland Only)

The GBSSG Support Fund (formerly the Help Fund) was created to help pay the travelling expenses for those visiting their loved ones in hospital. Since then, the Charity has considered and made grants for other reasons of hardship that can occur at this most critical of times.

If you register with us using the form below or through our Helpline, we can send you details of the Support Fund and how you should apply.

Internet Registration Form

Please supply as much information as you can without breaking patient confidentiality. The appropriate literature will be posted to you. Information booklets will only be posted to addresses in the UK, the Republic of Ireland and British Forces (BFPO).

Required*                    *E-mail:
* Your name:
*Your address:
(UK and Republic of Ireland addresses only)
(literature will be posted to this address unless otherwise specified)
Your post code:
*Your country:
Your telephone number:
   
If you are the patient, check here:
   
If you are not the patient  
Give patient's name:
Patient's home address (if different to above):
Patient's post code:
   
Patient's age:
If patient is in hospital, which one? (Hospital/town):
Ward/unit:
Ventilator status: Not applicable
Presently on ventilator
Was on ventilator
Ventilator not needed
Still too early to tell
Patient's relationship to you:
Date entered hospital:
Diagnosis: Guillain-Barré syndrome
CIDP
Miller Fisher syndrome
Other variant (state below)
Unsure
Not applicable
We have a Support Fund that may be able to offer financial assistance at difficult times. For example we can meet expences so you can visit a patient who is a long way from home in hospital. If you would like to receive details of the Support Fund, please check this box.
If you would you like our local representative in your area to contact you, please check this box.
(He or she may be able to visit the patient in hospital)

Other information:
How did you get to hear about the Support Group:
Any additional information on how you found out about us or a comment about the difficulty you had in finding us would be welcome so we might provide a better service.
Send this form to:
 
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