GBS Support Group

Registered Charity 327314

GBS Support Group, LCC Offices, Eastgate, Sleaford, Lincolnshire, NG34 7EB, UK.

Tel/Fax: +44 (0)1529 304615        Free UK Helpline: 0800 374 803        E-mail: admin@gbs.org.uk

This text has been downloaded from the Web site of the GBS Support Group, a registered charity that supports those affected by GBS, CIDP and related neuropathies. If you find these pages helpful, please consider helping us achieve our charitable aims. Details of how you can help can be found on our Web site at www.gbs.org.uk.


Non-medical Books

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As an associate of both amazon.co.uk and amazon.com, the Support Group receives a small commission on those Amazon sessions originated through the links above and the 'Buy it' links below. If you would like to order one of these books at a later date, please return to Amazon by this page.

 

Learning to Walk Again by Anne K Brandt (0595258239)

Amazon Book Description: Guillain-Barré syndrome is strange combination of symptoms that includes paralysis in varying degrees. It strikes men and women, young and old. Often the primary care physician has difficulty diagnosing a GBS patient. After the symptoms have peaked and recovery has begun, patients expect to regain their old routines. However, many find their lives have changed in some way. A quest for information and a need to be connected with other GBS patients led Ann Brandt to walk a different path, away from community college teaching and toward writing and liaison work with other GBS patients. Patients need to feel connected with others. They are hungry for information about others experiences with the disease. Read how a sense of humor, faith in God, and a stubborn nature can work in recovery.

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Solomon's Porch by Jane Riley (158851207X)

Amazon Book Description: Guillain-Barré syndrome is more than a disease: it is a disaster. SOLOMON'S PORCH, THE STORY OF BEN AND ROSE, is the intimate fictional account of one family's struggle with an ailment that left Ben Windham paralyzed and his relationships with people changed.

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Nothing But Time by Judy L Ayylidiz (0738852600)

Amazon Book Description: Overnight, everything in her life alters when Judy awakens paralyzed from the waist down by a mysterious illness. As she struggles for the courage to find a way of escape from this well of isolation, pain and powerlessness, her creative imagination takes flight. Armed with insight gleaned from her own stories about events and people in her past and present -- told with restrained humor and often with Appalachian flavor -- Judy discovers that her spiritual desire to "walk" is stronger than the fear of falling.

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A First Step by Brian S Langton (1553694112)

Amazon Book Description: Book Description Part one of A First Step - Understanding Guillain-Barré Syndrome is a true, blow-by-blow account of the Author's encounter, as a healthy Canadian businessman, with a rare and devastating disease, Guillain-Barré syndrome (GBS for short). It describes his seven-month long struggle for life in 'Intensive Care' after receiving a grim prognosis, and his subsequent dogged determination to overcome the effects of that disease. The second part is devoted to short stories based on dreams and hallucinations experienced whilst he was in 'Intensive Care', which in themselves reveal something of what a patient was going through. They also serve to illustrate the narrow boundary between reality and the dream world, and which whilst making for entertaining reading, could possibly be the subject of further study. Although the Author is a layperson, in medical terms, it is believed this book will be an important aid to medical professionals and care-givers, providing as it does, new insights and a unique perspective on the effects, not only of the disease, Guillain-Barré syndrome, but also of the handling and care of any long-term intensive care patient, and their subsequent rehabilitation. For the curious, it will answer many questions. For G.B.S. patients and their families it should provide inspirational reading. The foreword to the book has been written by Dr Frank Warshawski, MD, FRCPC, Director of Intensive Care, Rockyview General Hospital, Calgary. In addition to that prestigious involvement, the Author has been fortunate in receiving permission to use other material authored by exceptionally well qualified medical professionals, for which due credit is given in the 'Acknowledgements' section of the book, enabling him to produce not only an interesting publication, but an informative and educational one. In short, a 'must read' and deserving of a place on any medical bookshelf.               More details

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No Time for Tears by Dorris R Wilcox (1929175078)

Amazon Book Description: Combining aggressive self-education, massive doses of positive thinking, a barrage of nutritional supplements and unshakable faith in God's healing power, Dorris Wilcox achieved against the odds 95% recovery from Guillain-Barré syndrome, a potentially lethal neurological disorder. She gives sufferers from all debilitating afflictions the tools to acquire and maintain the positive mindset they need to triumph over their own adversity. Also included is an extremely helpful, comprehensive appendix of sources for additional information on Guillain-Barré syndrome.

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Bed Number Ten by Sue Baier and Mary Zimmeth Schomaker (0849342708)

Amazon Book Description: A patient's personal view of long term care. Seen through the eyes of a patient totally paralyzed with Guillain-Barré syndrome, this moving book takes you through the psychological and physical pain of an eleven month hospital stay. BED NUMBER TEN reads like a compelling novel, but is entirely factual. You will meet:The ICU staff who learned to communicate with the paralyzed woman - and those who did not bother. The physicians whose visits left her baffled about her own case. The staff and physicians who spoke to her and others who did not recognize her presence. The nurse who tucked Sue tightly under the covers, unaware that she was soaking with perspiration. The nurse who took the time to feed her drop by drop, as she slowly learned how to swallow again. The physical therapist who could read her eyes and spurred her on to move again as if the battle were his own. In these pages, which reveal the caring, the heroism, and the insensitivity sometimes found in the health care fields, you may even meet people you know.

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Masks by Gloria Hatrick (0531095142)

Card Catalogue Description: Desperate to help his older brother Will who has become paralyzed by a rare disease, Pete uses tribal animal masks to communicate with Will, allowing him to escape his useless body and embark on a series of strange and powerful dream journeys.

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No Laughing Matter by Joseph Heller and Speed Vogel (1556114249)

From Publishers Weekly: In alternating chapters, Heller and Vogel recount Heller's bout with Guillain-Barré syndrome, a paralyzing affliction that struck him in 1981, from which he has now recovered. [He has subsequently passed away.] The two voices blend magnificently. The authors have been friends for 25 years and together they engagingly draw readers into Heller's hospital room and into both their lives. The physical and emotional ramifications of Heller's condition, for himself and his circle of friends (Mario Puzo, Dustin Hoffman, Mel Brooks), are honestly detailed; and Heller, in his first nonfiction work, movingly and unsentimentally describes the experiences of paralysis, illness and rehabilitation. Stories of disease are unlikely to be as lively and fun as thisthere is even a love interest as Heller falls in love with his nurseand for anyone interested in Heller and his work, the book is a treasure trove of biographical information. Repetition slows the bookthe derivation of the name Kinky Friedman (he makes a cameo appearance in Good as Gold is offered several times; Joseph Stein is more than once identified as the author of Fiddler on the Roofand the authors seem to name-drop when they describe the social scene at Mt. Sinai, but as one friend of Heller's remarked to Vogel after a visit to the hospital: "It was not like visiting any other patient. It was sheer entertainment." First serial to the New York Times Magazine. Copyright 1986 Reed Business Information, Inc.

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This book may be out of stock or out of print. Amazon should point you to a used copy.

 

It Could be You by Dave Borshik

Published by the author. Price £10 (ten pounds UK) inc delivery. (Europe inc Eire: £11; Rest of the World: £12 AIRMAIL). Sterling funds only. Make cheques etc payable to 'D Borshik'. All copies will be signed but please quote any dedication specially required. D Borshik, 1 Goddard Lane, Hadfield, Derbyshire, SK13 1HJ, UK.

 


© 1997-2004 GBS Support Group

Though much of our material has been written by neurologists and other health professionals, the Guillain-Barré Syndrome Support Group is a registered charity and not a medically qualified organisation. The information we supply is for general educational purposes only and should not be regarded as advice on the diagnosis or treatment of either the Guillain-Barré syndrome or any other medical condition. Whilst every effort has been made to ensure the accuracy of the information provided, the Guillain-Barré Syndrome Support Group can not be held responsible for such information. This information provided is designed to support, not replace, the relationship that exists between a patient and his/her existing doctor.