UK/RoI Government Links
UK RoI Charities, Organisations, Companies etc
- Muscular Dystrophy Campaign. Though not forms of muscular dystrophy, GBS and CIDP are illnesses that come under the constitutional remit of the MDC. The MDC and GBSSG are partner charities.
- NHS Choices - information on Guillain-Barre syndrome.
- Brain and Spine Foundation. A medical charity providing information and services for people with neurological conditions.
- Bio-Products Laboratory. UK DoH-owned producer of plasma. A not-for profit unit of the National Blood Authority.
- The Neuropathy Trust. A UK-based charity that gives information and support for generic peripheral neuropathy. If you have an ideopathic (of no known cause) or obscure peripheral neuropathy, use this link. For more details of support groups for other peripheral neuropathies, see our peripheral nerve disorders page.
- The Glaxo Neurological Centre. A non-medical advice and information centre for peoplewith neurological conditions and those who care for them. Links to other UK neurological charities.
- The Dochas Fund. A Scottish charity that raises money to help those affected by GBS / CIDP and motor neurone disease by the sale of prints and cards of artwork by the late John Paterson. The Fund also organises exhibitions across the UK and is currently building a custom-designed gallery and carers' centre in Argyll.
- Pain Relief Institute. A UK charity which funds research into the causes and treatment of human chronic pain and is concerned with education of doctors and nurses in pain management.
- Disabled Living Foundation. A national UK charity providing practical up-to-date advice and information on many aspects of living with disability.
- JABS Justice, Awareness and Basic Support. UK Support Group for vaccine-damaged children.
- Princess Royal Trust for Carers. The Trust gives information, advice, emotional support and community consultation. Tel: 020 7480 7788. 142 Minories, London EC3N 1LB.
- Depression Alliance. The Alliance produces publications on depression and has a written advisory service offering support and understanding. It also organises self help groups.
- British Pain Society. The Society helps to relieve suffering of pain by promotion of education, research and training. It provides information on pain clinics locally and abroad.
- Continence Foundation. The Foundation has an incontinence information helpline and details of local continence advisors.
- RADAR (Royal Association for Disability and Rehabilitation). The Association provides all kinds of information and advice.
- Contact a Family. This Organisation provides support for families who care for children with disabilities and special needs.www.cafamily.org.uk
- Whizz-kidz. Whizz-kidz supplies mobility aids to disabled children under 18 and can help where NHS provision is inadequate.
- Motability. Motability helps with the purchase of new or second-hand cars.
- Age Concern England. Fact sheets and advice on a wide range of subjects relevant to older people.
- Help the Aged. Practical advice and support for older people.
- Medic Alert Foundation. Emergency identification bracelets and alarm systems for the elderly.
- Communication Matters (ISAAC-UK).
- Foundation for Communication for Disabled (Ability Net).
- British Red Cross Society.
- Irish Red Cross.