The books below may be of interest to visitors to this site. Most are available from Amazon and links are provided to amazon.co.uk and amazon.com (US).
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Timeless Ripple by Adam Imaan (1-904444-58-X) Book Description: Timeless Ripple is a heartfelt poetic expression of the emotional and spiritual journey of a patient called Adam, as he tries to come to terms with a diagnosis of Guillain-Barré syndrome, a crippling nerve-degenerating disease, and the changes he has to face, both in his physical capabilities and in the world around him following 18 months in hospital. Adam’s journey is trance-like, one of floating along the passive shores of life and, having inhaled the toxicity of his illness, he is seeking to exhale the raw emotions of a man who in many ways has lost everything, and yet has found contentment and fulfilment by writing profound, sensuous, enigmatic and thought-provoking poetry. Determined to understand and reconcile with intangible emotions such as love and anger, Adam is fighting a personal battle to beat the odds and regain his mobility, but it is a crusade in which readers are invited to share, to gain inspiration and comfort, to be challenged, and to seek a deeper meaning in their own lives. About the Author: Adam Imaan was born in England in 1973 and holds a degree in Business Administration. In 2001 he contracted a rare neurological illness called Guillain-Barré syndrome, leaving him paralysed and wheelchair bound. If it were not for his illness, such a powerful poetic offering as Timeless Ripple would never have materialised.
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Up from the Abyss: A journey of personal redemption from the ravages of Guillain-Barré syndrome by Italo Giovanni Savella (1594671095) Amazon Book Description: I assure you, though, there is nothing trite about coming down with Guillain-Barrè syndrome. For the person hit by it, it’s war and revolution wrapped in one: A catastrophe, an upheaval, a devastating blow. But also an invaluable experience and a possibility for renewal.
I wouldn’t be what I am now, a man at peace with himself and the world, had I not come down with, and fought back from, this terrible ailment. But I don’t want to sound excessive. It isn’t terminal cancer at young age, or trauma-induced coma and vegetative state; but, as Joseph Heller said, it’s no laughing matter, either. The blessing about Guillain-Barrè syndrome—and I mean that with only a little bit of irony—is that it doesn’t affect the gray matter upstairs. You know it’s bad, but you also know it can be defeated, and the struggle to overcome it lends a tremendous meaning of truthfulness to the old saying: “That which does not kill you…” You know the rest. It can paralyze you completely, and, occasionally, do you in, but the road back or, as I imply in my title, the uphill struggle from the abyss is Herculean and character forming.
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The Darkness is not Dark: Overcoming Guillain-Barré Syndrome by Regina R Roth (1594671095) Amazon Book Description: This is a story of true survival—of the university professor who survived a disease that took control of his nervous system and shut it down and of the wife who steadfastly endured every day with him. Meticulously journaling her husband’s ups and downs from onset to recovery, Regina Roth now opens her private diary to the public. It will build your faith and make you alternate between tears and chuckles. Few people have heard of Guillain-Barré Syndrome (GBS) or know anyone who has been stricken by it. As Regina’s book increases awareness of this hideous illness, her hope is that future victims will find quick and proper diagnosis. It is her prayer that the battle she and Roland have fought and won will inspire others who struggle with neuromuscular disorders. Buy it from amazon.co.uk Buy it from amazon.com
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Guillain-Barre' [sic] Syndrome: My Worst Nightmare by Byron Comp (1594579717) Amazon Editorial Review: How does it feel to be trapped inside a paralyzed body? How does one cope with the total loss of control of one's life? And how difficult is it to regain that control? Buy it from amazon.co.uk Buy it from amazon.com
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Numb Toes and Aching Soles: Coping with Peripheral Neuropathy by John A Senneff (0967110718) Amazon Book Description: A comprehensive guide for the millions who have painful and disabling peripheral neuropathy. Covered are causes, symptoms, tests and treatments - both conventional and alternative - and ways of coping day to day. The book is written from a patient's point of view with over 200 patient comments on treatments. There are also special sections for those with diabetic or HIV-related neuropathies (up to half in these groups are affected), as well as reports on experimental drugs in the pipeline. Inputs from 12 leading neurologists have been incorporated. Buy it from amazon.co.uk Buy it from amazon.com
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Numb Toes and Other Woes: More on Peripheral Neuropathy by John A Senneff (0967110734)
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Nutrients for Neuropathy (The Numb Toes Series, Vol 3) by John A Senneff, Laurence J Kinsella (0967110750) Buy it from amazon.co.uk Buy it from amazon.com
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Mountain to Climb: The Quest for Everest and Beyond by David Lim (981041417X) Book Publicity: On May, 1998, two members of the 1st Singapore Mt Everest expedition stood on top of the world. For expedition leader David Lim, it was the realization of a dream that had consumed him for more than ten years. But one week after the team's triumphant return to a rapturous welcome, David contracted the devastating and rare nerve disorder Guillain-Barré syndrome. Hanging between life and death, he could barely breathe, speak, swallow or even move a muscle. Mountain to Climb is an absorbing first-person account of David's preparation for the assault on Mt. Everest and his descent into the abyss of near-total paralysis. It is the story of a country's quest for Everest, the failures, heart-break and sacrifices behind one of Singapore's greatest sporting achievements. It is also an uplifting, inspiring and courageous story of a group of ordinary people with an extraordinary quest. You will agonize with the team as they come within 100 meters of the summit only to turn back, rejoice when they finally make it, and you will weep with David as he struggles in hospital. From climbing the world's greatest mountain ranges to his slow journey to recovery and uncertain future, Mountain to Climb is a story that will hold you in its grip like no other. Published in Singapore, this book is available from Top of the World Books.
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Book Publicity: David recounts living a life changed after being paralysed and then discharged from a 6-month stay in a hospital. Grappling with his new disabilities, he plans a return to his former life of mountaineering, life of community contribution, as well as a new dream to inspire and give hope to others. The story is told with flashbacks covering a time-span of 10 years. Further details and availability as Mountain to Climb.
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The Official [sic?] Patient's Sourcebook on Guillain-Barré Syndrome by Ikon Health Publications (059783069X) Amazon Book Description: This book has been created for patients who have decided to make education and research an integral part of the treatment process. Although it also gives information useful to doctors, caregivers and other health professionals, it tells patients where and how to look for information covering virtually all topics related to guillain-barrè syndrome (also Acute idiopathic polyneuritis; Acute immune mediated polyneuritis ; Acute Immune-Mediation Polyneuritis; Acute inflammatory demyelinating polyradiculopathy; Acute inflammatory neuropathy; Acute polyneuropathy), from the essentials to the most advanced areas of research. The title of this book includes the word official. This reflects the fact that the sourcebook draws from public, academic, government, and peer-reviewed research. Selected readings from various agencies are reproduced to give you some of the latest official information available to date on guillain-barrè syndrome. Given patients' increasing sophistication in using the Internet, abundant references to reliable Internet-based resources are provided throughout this sourcebook. Where possible, guidance is provided on how to obtain free-of-charge, primary research results as well as more detailed information via the Internet. E-book and electronic versions of this sourcebook are fully interactive with each of the Internet sites mentioned (clicking on a hyperlink automatically opens your browser to the site indicated). Hard-copy users of this sourcebook can type cited Web addresses directly into their browsers to obtain access to the corresponding sites. In addition to extensive references accessible via the Internet, chapters include glossaries of technical or uncommon terms. Buy it from amazon.co.uk Buy it from amazon.com
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The Official [sic?] Patient's Sourcebook on CIDP by Ikon Health Publications (0597830916) Companion to above. Buy it from amazon.co.uk Buy it from amazon.com
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Learning to Walk Again by Anne K Brandt (0595258239) Amazon Book Description: Guillain-Barré syndrome is strange combination of symptoms that includes paralysis in varying degrees. It strikes men and women, young and old. Often the primary care physician has difficulty diagnosing a GBS patient. After the symptoms have peaked and recovery has begun, patients expect to regain their old routines. However, many find their lives have changed in some way. A quest for information and a need to be connected with other GBS patients led Ann Brandt to walk a different path, away from community college teaching and toward writing and liaison work with other GBS patients. Patients need to feel connected with others. They are hungry for information about others experiences with the disease. Read how a sense of humor, faith in God, and a stubborn nature can work in recovery. Buy it from amazon.co.uk Buy it from amazon.com
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Solomon's Porch by Jane Riley (158851207X) Amazon Book Description: Guillain-Barré syndrome is more than a disease: it is a disaster. SOLOMON'S PORCH, THE STORY OF BEN AND ROSE, is the intimate fictional account of one family's struggle with an ailment that left Ben Windham paralyzed and his relationships with people changed. Buy it from amazon.co.uk Buy it from amazon.com
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Nothing But Time by Judy L Ayylidiz (0738852600) Amazon Book Description: Overnight, everything in her life alters when Judy awakens paralyzed from the waist down by a mysterious illness. As she struggles for the courage to find a way of escape from this well of isolation, pain and powerlessness, her creative imagination takes flight. Armed with insight gleaned from her own stories about events and people in her past and present -- told with restrained humor and often with Appalachian flavor -- Judy discovers that her spiritual desire to "walk" is stronger than the fear of falling. Buy it from amazon.co.uk Buy it from amazon.com
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A First Step by Brian S Langton (1553694112) Amazon Book Description: Book Description Part one of A First Step - Understanding Guillain-Barré Syndrome is a true, blow-by-blow account of the Author's encounter, as a healthy Canadian businessman, with a rare and devastating disease, Guillain-Barré syndrome (GBS for short). It describes his seven-month long struggle for life in 'Intensive Care' after receiving a grim prognosis, and his subsequent dogged determination to overcome the effects of that disease. The second part is devoted to short stories based on dreams and hallucinations experienced whilst he was in 'Intensive Care', which in themselves reveal something of what a patient was going through. They also serve to illustrate the narrow boundary between reality and the dream world, and which whilst making for entertaining reading, could possibly be the subject of further study. Although the Author is a layperson, in medical terms, it is believed this book will be an important aid to medical professionals and care-givers, providing as it does, new insights and a unique perspective on the effects, not only of the disease, Guillain-Barré syndrome, but also of the handling and care of any long-term intensive care patient, and their subsequent rehabilitation. For the curious, it will answer many questions. For G.B.S. patients and their families it should provide inspirational reading. The foreword to the book has been written by Dr Frank Warshawski, MD, FRCPC, Director of Intensive Care, Rockyview General Hospital, Calgary. In addition to that prestigious involvement, the Author has been fortunate in receiving permission to use other material authored by exceptionally well qualified medical professionals, for which due credit is given in the 'Acknowledgements' section of the book, enabling him to produce not only an interesting publication, but an informative and educational one. In short, a 'must read' and deserving of a place on any medical bookshelf. Buy it from amazon.co.uk Buy it from amazon.com Buy from publisher
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GBS - 5 Years Later by Brian S Langton with Sarah Ondrich and Patrick Hill (1412088720) Amazon Book Description:This book is about three people from different walks of life, each of whom experienced a life-changing episode of Guillain-Barré Syndrome. Three dramatic stories in one. Buy it from amazon.co.uk Buy it from amazon.com Buy from publisher
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No Time for Tears by Dorris R Wilcox (1929175078) Amazon Book Description: Combining aggressive self-education, massive doses of positive thinking, a barrage of nutritional supplements and unshakable faith in God's healing power, Dorris Wilcox achieved against the odds 95% recovery from Guillain-Barré syndrome, a potentially lethal neurological disorder. She gives sufferers from all debilitating afflictions the tools to acquire and maintain the positive mindset they need to triumph over their own adversity. Also included is an extremely helpful, comprehensive appendix of sources for additional information on Guillain-Barré syndrome. Buy it from amazon.co.uk Buy it from amazon.com
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Bed Number Ten by Sue Baier and Mary Zimmeth Schomaker (0849342708) Amazon Book Description: A patient's personal view of long term care. Seen through the eyes of a patient totally paralyzed with Guillain-Barré syndrome, this moving book takes you through the psychological and physical pain of an eleven month hospital stay. BED NUMBER TEN reads like a compelling novel, but is entirely factual. You will meet:The ICU staff who learned to communicate with the paralyzed woman - and those who did not bother. The physicians whose visits left her baffled about her own case. The staff and physicians who spoke to her and others who did not recognize her presence. The nurse who tucked Sue tightly under the covers, unaware that she was soaking with perspiration. The nurse who took the time to feed her drop by drop, as she slowly learned how to swallow again. The physical therapist who could read her eyes and spurred her on to move again as if the battle were his own. In these pages, which reveal the caring, the heroism, and the insensitivity sometimes found in the health care fields, you may even meet people you know. Buy it from amazon.co.uk Buy it from amazon.com
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Masks by Gloria Hatrick (0531095142) Card Catalogue Description: Desperate to help his older brother Will who has become paralyzed by a rare disease, Pete uses tribal animal masks to communicate with Will, allowing him to escape his useless body and embark on a series of strange and powerful dream journeys. Buy it from amazon.co.uk Buy it from amazon.com
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No Laughing Matter by Joseph Heller and Speed Vogel (1556114249) From Publishers Weekly: In alternating chapters, Heller and Vogel recount Heller's bout with Guillain-Barré syndrome, a paralyzing affliction that struck him in 1981, from which he has now recovered. [He has subsequently passed away.] The two voices blend magnificently. The authors have been friends for 25 years and together they engagingly draw readers into Heller's hospital room and into both their lives. The physical and emotional ramifications of Heller's condition, for himself and his circle of friends (Mario Puzo, Dustin Hoffman, Mel Brooks), are honestly detailed; and Heller, in his first nonfiction work, movingly and unsentimentally describes the experiences of paralysis, illness and rehabilitation. Stories of disease are unlikely to be as lively and fun as thisthere is even a love interest as Heller falls in love with his nurseand for anyone interested in Heller and his work, the book is a treasure trove of biographical information. Repetition slows the bookthe derivation of the name Kinky Friedman (he makes a cameo appearance in Good as Gold is offered several times; Joseph Stein is more than once identified as the author of Fiddler on the Roofand the authors seem to name-drop when they describe the social scene at Mt. Sinai, but as one friend of Heller's remarked to Vogel after a visit to the hospital: "It was not like visiting any other patient. It was sheer entertainment." First serial to the New York Times Magazine. Copyright 1986 Reed Business Information, Inc. Buy it from amazon.co.uk Buy it from amazon.com
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It Could be You by Dave Borshik Published by the author. Price £10 (ten pounds UK) inc delivery. (Europe inc Eire: £11; Rest of the World: £12 AIRMAIL). Sterling funds only. Make cheques etc payable to 'D Borshik'. All copies will be signed but please quote any dedication specially required. D Borshik, 1 Goddard Lane, Hadfield, Derbyshire, SK13 1HJ, UK.
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Now available from Barry Tortoise's E-bay shop.
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